This is progress.

For too long Bella has ‘got away’ with having more done for her than she needs. Ok that might be a bit unfair but she is, in my opinion, capable of much more than she let’s on or that people give her credit for. I’ve made it my mission this summer to get her more independent and I’m starting with dressing. Everyday she is dressed and undressed as unlike her brother she shows no awareness of even really needing to wear clothes. She does go through phases where she only wants to wear Square Peg hoodies and zip ups but other than this I’m pretty sure if I let her she’d go out in just a nappy if I let her.  Continue reading “This is progress.”

Another beautiful trip


The Square Peg Caravan has changed our life. It has given me somewhere consistent to take my children and they just adore it. 

A long beach, but we got to the sea

Ice cream bigger than his head
Laughing together at the fair

The children know what to expect now and sometimes we even get some nice weather (well it is in Wales!) For more info on both of our caravans go to Www.squarepegfoundation.org.uk 

Square Peg Foundation is a charitable organisation 

Goals.

Raising children often turns into a competition, the first to walk, talk, wean, the first to read, SATs results and so on. When you’re parenting children with special needs these goals become obsolete, you either never met them or you start to slowly slip behind. 

Bella is exceptional in many ways, she can count and read beyond her years, she can pick out tunes on the piano with relative ease. She can do all this but can’t converse, can’t irritate me with questions like her brother. She can’t use the toilet, can’t play in the same way as her peers or indeed with her peers. 

Until her 16 month mark she was mostly hitting her targets, she walked, gurgled, clapped hands….then everything slowed down almost to a stop. The targets ever since have meant nothing. It’s time to redefine my own targets for her;

By the end of the summer she will be able to put on her own T-shirt ready for school. this will mean I only need to put her feet into her trouser as she can pull them up herself. Life skills are so important

.After that we’ll try socks which is something Logan still struggles with.

Speaking of Logan my goal for him is;

To learn to write the letter a. He gets so angry that he can’t write the penultimate letter in his name.

Just in time for school!

Log+n

Catch up…

So Logan officially graduated nursery (thank you USA for more mini celebrations) although he’s still there all summer at their playscheme so I’ve held back on his teachers gifts. When he leaves I’ll have been using that nursery continuously for 4 years. The staff have been more than amazing, they have supported me and my children far more than was expected and I’ll never find the words to thank them.  Continue reading “Catch up…”

Rock the boat

I received the letter I had been waiting for yesterday, it was the letter which followed the conversation with our social worker saying that the disability team panel had decided Bella and I weren’t in need of any support over the summer. I opened the envelope with trepidation, it was quite thick so I found myself a comfy spot on the sofa ready to plough through the pack. Actually what I got was one sheet of paper stating the names of panel members and a quick message that they had decided she “didn’t fit the criteria.” Continue reading “Rock the boat”